Saturday, September 20, 2008

Update on Kennedy Brownback Bill from NDSC

NDSC and NDSS Urge the Down Syndrome Community to Take Action Today!
Prenatally and Postnatally Diagnosed Conditions Awareness Act - ANOTHER CRITICAL VOTE SOON!
The development of up-to-date, accurate and evidence-based information should never be a partisan issue.
The Senate may soon hold another critical vote on S. 3297, the Advancing America's Priorities Act, a package of 35 bills which includes the Prenatally and Postnatally Diagnosed Conditions Awareness Act (S. 1810), introduced by Senators Kennedy (D-MA) and Brownback (R-KS). This may be the first of several votes on S. 3297. However, this first vote likely will determine whether the Senate passes the Prenatally and Postnatally Diagnosed Conditions Awareness Act this year!
Therefore, please contact your Senators immediately and tell your friends, family, colleagues - and everyone you know - to do so as well. Urge your Senators to vote YES on S. 3297. Even if you already have contacted your Senators this week, your outreach is still needed. We want to fill Senator's inboxes and make it clear that they must pass the Prenatally and Postnatally Diagnosed Conditions Awareness Act this year.
Letters you can personalize and send to your Senators are available in the Advocacy Action Center of the NDSS website, here: http://capwiz.com/ndss/home/. If you don't know the names of your Senators, don't worry. The Advocacy Action Center automatically will identify them for you and enable you to contact them directly from the site.
Talking Points

Please use the following talking points when you call your Senators' offices today:

I am a of the Down syndrome community calling to urge my Senator to vote YES on S. 3297.

The two national organizations, National Down Syndrome Society (NDSS) and National Down Syndrome Congress (NDSC), representing over 400,000 individuals with Down syndrome and their families, also support the passage of this bipartisan legislation.

The S. 3297 bill includes, Prenatally and Postnatally Diagnosed Conditions Awareness Act, which is a bipartisan compromise that will promote and develop up-to-date, evidence based information and materials for parents who, increasingly in the 21st century, receive a prenatal diagnosis of Down syndrome and other genetic conditions.

This is a nonpartisan issue that affects all of our children and adults with Down syndrome and their families.

The development of up-to-date, accurate and evidence-based information should never be a partisan issue.

1 comment:

Michele said...

Thanks for the updates on this bill!

I had an unrelated question. I was looking at another post of yours;The Holy Father gives an inside tour to President Bush.

In that post you mention Jeb Bush's pilgrimage to Our Lady of Guadalupe.

I have also heard about Jeb Bush and his wife making a pilgrimage to Our Lady shrine and of course we are all aware that Dec. 12 is the day George Bush officially won the 2000 election.

Do you have a good source for this information as I am trying to do something on my blog about this. I have some information but need more if possible.