Showing posts with label prenatal testing. Show all posts
Showing posts with label prenatal testing. Show all posts

Tuesday, February 28, 2012

Santorum is right, pre-natal testing encourages eugenic abortions

The Tampa Bay Times Pollitifact Truth-o-meter  conducted incomplete and shoddy research when it negated Rick Santorum's statement that pre-natal testing increases abortion of babies with conditions like Trisomy 21 (Down syndrome) or other, less common disorders, like Trisomy 18 (which his daughter Bella has).
Santorum told Face the Nation host Bob Schieffer that it’s used to "recommend abortion."
"Amniocentesis does, in fact, result more often than not in this country in abortion," he explained during the CBS News interview on Feb. 19, 2012.
Rick is right, the current statistic for parents who abort after a diagnosis of Down syndrome is 90% according on the source used by Pulitzer Prize winning series of articles, "The DNA Age: New Prenatal Test Puts Down Syndrome in Hard Focus" by Amy Harmon of the New York Times. Somehow the Tampa Bay Times didn't find this source, readily available by a simple Google search on pre-natal testing. It seems Senator Santorum has a better command of the facts, and an interest in telling the truth. The Tampa Bay Times states;
Separately, we checked Santorum’s statement from the same interview that "90 percent of Down syndrome children in America are aborted." (We found that Half True — some regional studies bear him out, but the American College of Obstetricians and Gynecologists says it’s difficult to generalize for the entire nation.)
The source quoted by the New York Times is NCBI a publication of the National Institutes of Health, not "some regional study". It is echoed by a recent article in the Daily Telegraph from the UK.
Prof Joan Morris, professor of medical statistics who carried out the research at Queen Mary, University of London, said: "We are getting more pregnancies with Down's syndrome because women are having their babies older and because we are screening more accurately and screening more women, there are more terminations.
More testing equals more diagnoses, which leads to more terminations. Why is this too hard for the Tampa Bay Times to follow? One suspects there is an agenda present. The same agenda Rick Santorum alluded to when he said that women are pressured to abort babies with pre-natal dianoses like Down syndrome. The same agenda Down syndrome advocates fear when they make statements like this in the Telegraph article.
Carol Boys, Chief Executive, Down's Syndrome Association said: "We realise that tests will continue to become more accurate at increasingly earlier stages of pregnancy.
"It is therefore even more important that families undergoing the screening process are given non-directive counselling and accurate, up-to-date information about Down's syndrome."
Sounds to me like there are many people out there who are concerned about the pressure to abort unborn babies with Down syndrome. Would that be because its a well known fact? Rick thinks so; he went on to state in his interview with Bob Schieffer that physicians often pressure women to have an abortion. He speaks from personal experience which is inarguable.

 I have collected dozens of testimonies in the past six years which prove him right. Here are three, a medical student, and two expectant mothers:
 One medical student who asked not to be named remembered this from his class on prenatal testing. The professor stated that it was standard practice to counsel a woman whose prenatal diagnostic test came back positive for Down syndrome to abort. I asked "what if she says she wants to carry her baby to term?" to which my professor responded, "then you tell her, that from the day that child is born, her life is over."

Read a passage from my book, "A Special Mother is Born" where a mother describes her doctor's reaction to her daughter's pre-natal diagnosis.
     The doctor came in and told me the baby had excessive water in her brain and a large hole in her heart. He concluded that the baby had some sort of a chromosomal abnormality, possibly Down syndrome. I felt as if I was in a daze. “What can I do to help her?” I asked, trying to keep my heart from racing. He told me it was too late. At first I didn’t understand what he meant. Then it hit me that he meant an abortion would have taken care of everything. Anger crept in and I answered back, “She’s my daughter. God gave her to me.” The doctor just stared at me, turned around and began writing a prescription for an amniocentesis. I refused since this carried an increased risk of miscarriage. It was clear to me that the future trips I had to take to this doctor’s office would be awkward, since he was clearly upset with my decision to keep my baby. 
No the doctor did not say anything but this mother felt the hostility and dreaded her future pre-natal visits.
Pressure.  But she had a supportive husband and faith community behind her.
 Another mother I counseled was not so lucky; an unmarried Latina immigrant whom I'll call Maria chose to abort at 20 weeks because her doctors told her that her son "couldn't do anything". He could never learn to read, tie his shoes,  or go fishing with his father. She felt overwhelmed and was bullied into a late term abortion, causing her much emotional stress.
 This is not choice, this is eugenics, which states that some humans have more of a right to life than others, recalling the T4 Program of the Nazis where the disabled were put to death even before the extermination of the Jews. It seemed that no one cared to speak up for them but a few bishops. They needed a politician like Rick Santorum in Nazi Germany. We need one like him in the US where Obamacare is starting to resemble a socialistic state with each new revelation of what it contains.

Bookmark and Share

Tuesday, January 03, 2012

Why Catholics should support Rick Santorum: Values and Economics

I don't understand conservative Catholics who won't support Santorum but they can be divided into several groups;
1. Ron Paul anti-establishment zealots- you can't talk to them
2. Pro-lifers holding a grudge against Rick for supporting Specter against Toomey in the PA Senate primary. We must remember Specter was brought into line and we got Alito and Roberts while he was chair of the Judiciary Committee. Toomey is now the Senator from PA.That was the reasoning behind Santorum's support of Specter and may explain the loss of his Senate seat in 2006.
3. Conservative Catholics who think he's unelectable. Rush Limbaugh said recently only a true conservative will beat Obama. Santorum is surging in the polls, and getting money and media hype he was long denied.
4. Conservative Catholics who don't like some other less important aspect of his policy (like foreign policy) than life issues. Nothing is more important than ending the holocaust of abortion. The Pope says so.
5. Derisive comments that he doesn't 'sparkle' on TV. Obama sparkled during his 2008 campaign, see where that got us?

Let me be perfectly clear; when I first interviewed Rick for Canticle magazine in 2008, Fr Edmund Silvia wrote a sidebar to my article "Catholics in the Public Square: Catholic Politicians who Stood Their Ground" about the so called "non-negotiables":which are the life issues(embryonic stem cell research, loning, abortion) and traditional marriage are THE issues where a candidate must conform to the age-old standard of Catholic moral teaching.
Rick is the Catholic candidate which has the best record on these issues, and I will never forget his defense of the dignity of the unborn child during the Partial Birth Abortion debate.
Rick Santorum with Bella, Leticia and Christina Velasquez
He has written a book "It Takes a Family" which explains in great detail the Catholic social teaching of subsidiarity, or letting the lowest level of government handle aspects of our lives, and the relationship between strong two parent  families and a health economy.He argues that the family is the building block of society, NOT the federal government.
 More broken families mean more broken people whom the federal government has to imprison, rehabilitate, house, feed, and re-educate. The Democrats know this well, products of single parent homes is the bulwark of their base, they need to vote Democrat to keep their checks. The Dems need to keep them dependent on entitlements to remain in office.  While they refuse to strengthen marriage or offer educational choice, the true ways out of poverty. Is this true concern for the poor?

I have a personal reason for supporting Rick. We are both parents of special needs children. He has a special needs daughter, three year old Bella who has trisomy 18 and has promised to champion such children if elected. This truly comforts those of us who have a deep-seated fear that, in a couple of years we will be fighting the Obamacare system for medical care for our special needs children. We had a conference in 2009 entitled Healthcare for Gunner. where we joined parents from Canada who had experienced discrimination against their disabled children under their socialized medical system.
That would not happen under a Santorum presidency.First of all, he promises to abolish Obamacare.  In addition,  I am confident that instead of NIH funding research into pre-natal testing which results in a 92% abortion rate for children like his Bella and my daughter Christina with Down syndrome, increased funding would go towards the promising research to improve their learning and memory skills.Many promising research projects are in clinical trials but would be farther along if they had as much funding as is given to the search-and-destroy prenatal testing methods.

Pro-family, pro-life, and pro-freedom, Rick has an immaculate record in his personal life and an outstanding record of public service to back up his detailed, populist economic plan according to Mark Sticherz of Catholic Vote. and Rich Lowry of National Review;

In the debates, Santorum has constantly talked about increasing economic mobility. In a heresy for a Republican, he’s acknowledged that some countries in Europe are more mobile than we are, and he has noted the disparity between the unemployment rates of college-educated and non-college-educated Americans. Santorum proposes zeroing out the corporate tax rate for manufacturers to provide them a boost as a source of blue-collar jobs. “We need to talk about people at the bottom of the income scale being able to get necessary skills and rise so they can support themselves and a family,” Santorum said at the CNBC economy debate. He’s right, although he is one of the few Republicans who seem determined to have the conversation.
Rick Santorum is the obvious choice for faithful Catholics.And values voters.And he has been proving in the last few days that hard work pays off as he surprised everyone but his followers, by his surge. We knew you could do it, Rick!


http://spectator.org/archives/2011/12/16/a-santorum-surge-or-a-jindal-j
Bookmark and Share

Friday, October 28, 2011

National Down Syndrome Society asks that we write to Sequenom about MaterniT21


A request from the National Down Syndrome Society, who asks that we write an email to Sequnom the makers of MaterniT21 the new prenatal screening test which we fear may decimate the Down syndrome population of 400,000 in the US.

Read about it in my article.

Jon Coleman the Director of NDSS says,

Please urge Sequenom to meet all NDSS criteria for prenatal test companies. To see the NDSS Criteria to Evaluate Companies with Non-Invasive Prenatal Diagnostic Tests for Down Syndrome click here.
     
Click here to download the customizable letter and email it to info@scmmlab.com. 



Bookmark and Share

Tuesday, October 18, 2011

Fair article on MaterniT21 at the New York Times

Ever since Amy Harmon's Pulitzer Prize winning The DNA Age Series article "Prenatal Testing Puts Down Syndrome in Hard Focus" I have had a growing respect for the Times' coverage of issues regarding Down syndrome. Dan Hurley's wonderful magazine article on Dr Alberto Costa was another proof that they are giving our side a fighting chance despite the acrid tone of most of the comments. I wrote him to thank him and he said he was overwhelmed with positive emails from his article. I hope that he told his superiors, that more such press would do the paper proud.

Andrew Pollack's piece today on the Prescriptions blog is further proof that advocates of those with Down syndrome have made inroads in public reporting of the issue.Our position is fairly articulated


But some advocates for those with Down syndrome fear the new tests, which can be conducted as early as the 10th week of pregnancy, will lead to more abortions and reduce the population of those with Down syndrome. And they lament what they say is the perception that lives with Down syndrome are not worth living.

 He quotes Dr Skotko's impressive survey on the happiness of those with Down syndrome and their families,
Dr. Brian G. Skotko, a specialist in the Down syndrome program at Children’s Hospital Boston, said that the number of babies born annually with Down syndrome in the United States declined 11 percent from 1989 to 2006. This was during a period when the number of such births would have been expected to increase by 42 percent because more women were putting off child-bearing until they were older, when the risk of an affected pregnancy increased.The reason is that most women who find they are carrying a fetus with Down syndrome, which causes mild to moderate mental retardation, terminate the pregnancy.
 and the angst felt by researcher Dr Alberto Costa who is afraid the money will not be there to cure the cognitive delays in Down syndrome if all the research dollars go to prenatal screening tests.

All in all, its an accurate portrayal of the other side of the ''good news" that other papers are insensitively touting as a "life saving breakthrough." Such language hits me in the stomach like a sucker punch. That's my daughter they're desperately trying to abort!
If only they knew her like we do!

Which is the reason I became a blogger five years ago this month.

Read the entire article here. And please take the time to leave a positive comment amid the sarcastic and condescending ones. So many hurting people used this article about our innocent children to spew their venom!
Bookmark and Share

Wednesday, June 22, 2011

AP video on new Down syndrome tests

Erin Witkowski is worried that the new non-invasive pre-natal tests will mean that there are no babies left like her son. See her comments in the AP Video here. 
Bookmark and Share

Thursday, February 03, 2011

I'll be on WBUR Friday Feb 4 at 3PM

I will be responding in a taped radio interview to a show on Radio Boston of Boston University on pre-natal testing for Down syndrome. You can listen online.
You can listen to the original show here. 
Bookmark and Share

Friday, January 21, 2011

Dr Brian Skotko on new pre-natal test for Down syndrome

Fellow at Children's Hospital of Boston, Dr Skotko is more than a pediatrician, he is an advocate for those who have Trisomy 21, or Down syndrome. He has given countless workshops on Down syndrome, and has a special point of view as the sibling of a sister with Ds. He has written several books including Common Threads, and  Fasten Your Seatbelt; A Crash Course  on Down Syndrome for brothers and sisters.
My daughters and I enjoyed his sibling workshop and found it very helpful to discuss the issues which arise in families with children like my Christina. I wrote about our experience here.
His thoughtful  and sensitive article about the strong possibility that all pregnant women will now use a new blood test for Down syndrome is excellent, as he raises the point that few medical students receive training about patients with special needs, and thus are ill prepared to give a mother with a positive test for Down syndrome. Yet, that is exactly what they will be doing. Dr Skotko says,
Currently, 92% of all women worldwide who receive a definitive prenatal diagnosis of Down syndrome choose to terminate their pregnancy. Based on those numbers, what does the future hold for the Down syndrome population once the new prenatal tests are available? The answer lies nestled in profoundly personal decisions, but still raises an important question, one that will be asked more and more frequently as other forms of prenatal testing come to the market: which forms of human genetic variation are valuable, and which are nott?
Its up to parents like me and professionals like Dr Skotko to spread the word that children with Down syndrome are a source of joy to a family which far suprasses the challenges in their lives. That is something no blood test will ever tell you!


Bookmark and Share

Thursday, December 09, 2010

Sordid story of Sequenom the merchant of death

They started by spamming my blog Cause of Our Joy, telling my readers that there was "good news". Now Sequenom was coming up with a non-invasive test to diagnose Down syndrome even earlier in pregnancy than amniocentisis. You could have your less-than-perfect child killed before you had to buy pregnancy clothes, and before you had to make excuses to the world about why you were no longer pregnant if you chose to abort the baby. Such a corrupt concept on its face can come to no good. Investors didn't care about the morality of their investments, just the outcome. They lost big time.
 Many investors thought this was a no-lose proposition and invested their money in Sequenom. No test materialized, and now the underlying scandal  has come to light . The test was delayed last April but investors were not notified. Only insiders knew(see quote below). Such are the tactics of the merchants of the Culture of Death. Deal with them and you will get what you deserve.

A Baltimore business consultant and his uncle pleaded guilty to trading on inside information that Sequenom Inc. was delaying the start of a genetic test for Down’s syndrome in April of last year.
Read the entire story at Bloomberg Business Week.
Bookmark and Share