WASHINGTON – U.S. Senators Sam Brownback (R-KS) and Edward Kennedy (D-MA) today reintroduced the Pre-natally and Post-natally Diagnosed Conditions Awareness Act, legislation which would require that families who receive a diagnosis of Down syndrome or any other condition, pre-natally or up until a year after birth, will be given up-to-date information about the nature of the condition and connection with support services and networks that could offer assistance.
Those of us who advocate for the rights of the unborn, as well as for the rights of people with Down syndrome have been preparing for this. I see us organizing a welcome kit to parents expecting a child with Down syndrome, containing the book Gifts, the DVD Mr Blue Sky, my upcoming book, and lists of national and local Down syndrome advocacy groups, as well as pre-natal support groups like Be Not Afraid.net and Pre-natal Partners for Life. This support will also include contact information of parents like me, who can honestly tell what raising a child with Down Syndrome is like, for example read my piece, "A Special Mother is Born" published in May/June Faith and Family magazine on the birth of my daughter Christina.